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How to Care for Someone with MS

Over 130,000 people are estimated to have Multiple Sclerosis (MS) in the UK with around 7000 people diagnosed every year. MS is a challenging and unpredictable condition that impacts not only those diagnosed with it but also their loved ones.

MS care at home requires a unique and personalised complex care plan, which is patient-focused and adjusts to the evolving needs of the individual throughout their journey with the condition. So what is the best way to care for someone with MS? Read more to find out. 

Understanding MS 

Multiple Sclerosis is a chronic disease of the central nervous system, where the immune system mistakenly attacks the protective covering of the nerves in a person’s brain and spinal cord. MS affects people differently, with some people’s symptoms getting worse over time while others have symptoms that come and go in what is termed relapse and remission.

Although there is no cure for MS, with the correct care and medication symptoms can be managed and people can live very fulfilling and long lives. 

Symptoms of MS include: 

  • Fatigue
  • Mobility issues
  • Vision problems
  • Numbness and tingling
  • Muscle weakness
  • Difficulty swallowing 
  • Loss of bowel and bladder control 
  • Cognitive changes 
  • Emotional changes

Symptoms of MS can vary widely from person to person, and individuals will experience different levels of severity. Additionally, symptoms can change over time which is why MS is a highly unpredictable condition that needs personalised care tailored to each individual. Early diagnosis and comprehensive medical management can help individuals with MS better manage their symptoms and improve their quality of life.

There are four types of MS: clinically isolated syndrome (CIS), relapsing-remitting MS (RRMS), primary progressive MS (PPMS) and secondary progressive MS (SPMS). All of which have their own unique set of symptoms. The more rapidly progressive cases of MS and later stage MS will need more complex and specialised care such as help with movement, feeding, bathing, communication and pain management. This can also include palliative care, depending on the individual’s age. 

Here at HFH, we create bespoke in-home care plans for people with MS, providing a comprehensive range of clinical and emotional support for our clients. Our dedicated care team at HFH are well-versed in the complexities of MS and are able to provide the highest standard of care and support.

MS care at home  

The first step in caring for someone with MS at home involves an in-depth assessment of the individual’s specific needs, symptoms, lifestyle, and personal preferences. We work closely with the individual, their family, and other clinical professionals to evaluate their condition and the level of assistance they require for MS care at home.

The complex care plan for a client with MS can cover a broad range of services including:

  • Helping with daily tasks and activities
  • Mobility assistance including complex moving and positioning
  • Complex medication administration and management
  • Bed sore management 
  • Monitoring vitals 
  • Incontinence and bowel management 
  • Psychological and emotional support
  • Palliative care if required 

HFH’s comprehensive assessment takes into consideration all these factors, ensuring a complete picture of the client’s care needs.

We understand the importance of our client’s dignity and quality of life throughout their care.  That’s why our complex carers encourage independence wherever possible and work towards understanding and respecting the personal boundaries and preferences of our clients, making them feel as safe and comfortable as possible. 

Reviewing and evolving MS care at home

MS is a condition that can change over time, and the care plan must evolve to align with these changes where possible. We maintain regular communication with the individual, their family, and other healthcare professionals, reviewing and updating their care plan as needed, which is continuously overseen by our Nurse Case Managers. This ensures the delivery of the most effective and appropriate care at all times.

A women with MS enjoying time outside with her child

The benefits of MS care at home

Living with MS can be challenging, but with the right in-home care plan, individuals can lead fulfilling lives. A well-structured care plan ensures that the individual’s MS is managed correctly, reducing complications and enhancing their overall well-being, allowing them to continue with their daily lives at home as uninterrupted as possible.

Through our personalised MS care plans, we aim to empower individuals, helping them achieve a sense of accomplishment and independence. By managing their symptoms effectively and providing holistic support we help individuals with MS to live their life to the fullest.

At HFH, we offer the very best in patient-centred MS care plans to cater to individual needs, ensuring they receive the best support throughout their care.

To find out more about our complex care services, please call us on 0208 605 9714 or email referrals@hfhhealthcare.co.uk.

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