Natasha’s Story

Natasha was born with a rare genetic condition called Familial Dysautonomia (FD) which is a malfunction of the autonomic nervous system, there are less than 20 similar cases in the country. In her teens, Natasha experienced complications following spinal surgery that resulted in paraplegia (loss of function of her lower limbs) which meant she now requires 24-hour care.

Her care needs:

The autonomic system is responsible for control of the bodily functions not consciously directed, such as breathing, the heartbeat, and digestive processes. The most significant of these for Natasha is maintaining her blood pressure. As a result, our clinical team worked alongside medical specialists to devise a care plan which would monitor and mitigate any complications as a result of Natasha’s blood pressure instability.

HFH built and maintain a core team of specialist carers around Natasha, who in turn are supported by a dedicated Care Coordinator (CC) and a named Nurse Case Manager (NCM). Together the CC and NCM ensure any carers joining Natasha’s established team are inducted in a controlled manner with clinical support and supervision through our in-house training academy, orientation shifts at the home and client specific competency assessment.

This robust approach reinforces the importance of getting to know Natasha as a person and that communication between care team members is critical to maintain her safety. This is because necessary care interventions or fluctuations in emotions could potentially cause adverse effects to N’s blood pressure.

The Outcome


As a result of continued close working with Natasha and her family, HFH have facilitated her to live independently for the last 7 years, with regular safe and supported access to the community. Her care team have journeyed with her through major life milestones from holidays to moving home and marriage.

"I would recommend HFH to anyone!"